Monday, July 15, 2024

Urban Institute study finds government data collection undercounts people with disabilities

Reprint straight of announcement:

 

National household surveys collect vital demographic and health data on the US population, including people with disabilities. However, current approaches to measuring disability status in federal surveys undercount the disabled population, which may limit understanding of economic and health disparities, a new study by Urban Institute researchers finds.

Specifically, the researchers find that the six standard questions used in the federal American Community Survey (ACS-6) do not identify a meaningful share of adults with disabilities. Both adults reporting disabilities based on the ACS-6 and those with disabilities that are not captured by the ACS-6 experience high rates of fair or poor health, material hardship, and unfair treatment in health care settings. These findings suggest reliance on standard measures alone underrepresents the experiences of many disabled people and hinders accurate measurement of disparities in health and well-being

Recent proposals to adopt an even more restrictive definition of disability status in the American Community Survey could exacerbate these measurement challenges and hamper efforts to monitor compliance with civil rights protections; assess service needs and equitably allocate public funds; and address unequal treatment in health care.

“Further research and collaboration are needed to develop more comprehensive and inclusive measures of disability status,” the researchers write. “Improving data collection standards can provide a more accurate estimation of the disabled population, enhance understanding of economic and health inequities, and inform policies and programs that serve people with disabilities.”

Read the report to learn more, and please email me if you have questions or would like to connect with the research team.

 
Sincerely,

Amy Elsbree
Associate VP for Strategic Communications and Outreach
202-261-5513
aelsbree@urban.org



U R B A N   I N S T I T U T E
www.urban.org

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